Life as a Widower

A young widowed father opening up about living with loss

burst bubble

This is a guest post by Kathi Palitz

Kathi is 33 years old and mother to three daughters. Her middle daughter, Vega, was diagnosed with acute lymphoblastic leukaemia in January 2012. She is still on treatment, and will be until June 2014, but is doing well right now. This is a very open and honest post about a mother’s feelings of helplessness and loss upon her child’s diagnosis. It’s the second post to feature on this blog about the complicated issue of ‘living loss’. Click here for the first.

My middle child, Vega, was diagnosed with leukaemia in January 2012. It was an incredible shock, suddenly being faced with the possibility of my then three-year-old child dying. I have not had many losses in my life, other than my grandparents, and somehow I felt like I had lived my life happily in a pink coloured bubble until my daughter’s diagnosis. Suddenly the possibility of her life ending made me feel utterly helpless. I could tell myself that I was foolish to feel like this, that everyone’s life had to end at some point. But in my pink bubble people died when they were old, having had a long and more or less fulfilled life. They would pass away peacefully, in their sleep or with loved ones by their sides after having had a chance to say what was left to say. Children don’t die. My child couldn’t die.

All of a sudden my bubble burst and I entered a cancer no man’s land. I felt so bereaved; I felt like I had already lost her although she was still there, right in front of me. From one moment to the next our whole future changed – both hers and mine. I grieved for both the person she would have been without cancer and for the relationship we would have had without living through such trauma at such young age. Of course I feared for her life. The uncertainty as to whether she would live or die paralysed me.

In the beginning, when she was very poorly, I found it almost unacceptable to live with her diagnosis and I became very angry. The words ‘life threatening’ were like a bad joke – an evil trick being played on us. The patient is given time, the possibility to live, but you always know it might not be for long. The good moments become so bittersweet: each laugh, each hug, trivial daily things became a reminder of how empty my world would feel if Vega was gone. I felt under pressure to live, to cherish these moments but the more I did the sadder I became. Death had entered my life and was slowly tainting every moment of it.

I soon found out that a terminal or life threatening illness is not just a diagnosis either. We began to see Vega deteriorate, suffering through medical interventions to save her. One of my most painful moments was when I began to wonder if all this pain was really worth it. Seeing her so very ill due to the disease, but even more so due to the treatment, I almost lost faith. I was terrified of seeing my child suffer a painful, long death. I feel so ashamed of admitting that I harboured these thoughts, but I even longed for it to be over. As a mother you are there to fight, to never give up, to believe. I was given a chance to fix her, something that other people never get. But it is hard to be positive when faced with such misery and pain.

Vega did make it through the worst of her treatment. She never gave up and as time went on I took her as my guide. I realised that she is who she is – a future can not be foreseen – cancer or not. It seemed ironic that I would grieve for something I never knew I would have. My expectations of life, or more specifically, a normal life have changed somewhat. I now think that there is no such thing. In the beginning I often caught myself thinking, Nothing will ever be the same. But nothing ever is the same anyway.

I have moments when I can feel panic starts to wash over me, about the cancer coming back, about losing her after all we have been through. I do not fight these feelings anymore, maybe I have lost that resilience or maybe I have become more accepting. I don’t think this will ever go away again. I will not forget the many evenings when Vega was in hospital and I was having dinner with her sisters, with the big Vega-shaped hole between us. But Vega is living as if there is a tomorrow, and so I try to as well.

Vega was diagnosed with acute lymphoblastic leukaemia in January 2012. She is still on treatment until June 2014 but is doing well right now.

Vega was diagnosed with acute lymphoblastic leukaemia in January 2012. She is still on treatment until June 2014 but is doing well right now.

8 comments on “burst bubble

  1. Caroline
    September 19, 2013

    Brave family. In my prayers xx

  2. reb1313
    September 19, 2013

    My story was the first living loss post, I understand the grieving for someone who is still here but will never be the same again or who they were supposed to be. My thoughts are with you all.xxx

  3. jojoka1963
    September 19, 2013

    So moving.
    Thank you for sharing.
    x

  4. Bill Wright
    September 19, 2013

    Vega is beautiful, you and your family are in my thoughts x

  5. Christy
    September 19, 2013

    Vega is so precious, simply beautiful. I have a three year old also, so it is quite easy to put myself in your place. Have you heard of Dr. Burzinski? I know it is a needle in the haystack, but I had to mention it as I recently became aware of him and his clinics. I consider taking my mother there, but she is in remission and doing very well. My heartfelt prayers. http://www.burzynskiclinic.com/

  6. Natalie Lobel
    September 19, 2013

    thanks for sharing this story, you have a beautiful and brave daughter and you’re very brave yourself for opening up. I feel I can really relate as I am 33 and living with a very rare, incurable cancer – I am currently in biomedical remission which is great but the life I lead now is very different to the one I thought I would live and I constantly grieve for the life I might have had. I get incredibly angry and anxiety dominates my life now. I think it’s really important to keep talking to people who understand. I hope you have a good network to support you. All the best.

  7. Soph
    September 19, 2013

    Much love to you all! My cousin suffered ALL at the same age and didn’t go into remission until she was 6, but is going strong without relapse at 18. The chemotherapy and radiotherapy have given her some lifelong health problems, but she is a happy college student, something her parents certainly never foresaw in those dark early days.
    There’s always hope. Xxx

  8. Russo Lewis
    September 19, 2013

    Sharing as you have, gives the one that reads your testimonial the strength at least to attempt to think through the every day, nights and mornings, on awakening, when under the pressure of dealing with the suffering of those still alive yet under the threat of death and whom you would ‘fix’ despite learning slowly, over time, painfully, in grief, that you cannot ‘fix’ the problem that is taking them from you and from their own life as they know it. Though I could write here of my own daily battle with my wife, an invalid stricken with Parkinson’s disease, slowly weakening, her courage that eclipses my own every day during the hours I spend at her side in a nursing home, I will restrict my comment to that in order to offer you my thanks and to tell you that sharing as you have, so beautifully written, has helped others, specifically, me and my family. Thank you, Vega, and you, good mother for sharing as you have. You have brought light into the darkest of places.

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